Interestingly, the "CEO" doesn't dispute that they are collecting and using private patient information. Instead he suggests they're just not doing anything "bad" with the information they obtain. And then he tosses out a cheap shot on my name Crazy RxMan.
And of course, the CEO doesn't want a public discussion. Instead I'm referred to the company email. But are my claims baseless? Take a look at my next tweet, where I pointed out information DIRECTLY FROM the GoodRx website:
The GoodRx "CEO" then responded in a tweet that they obtain their income from "ads and referral fees," not really specifying what that means. And who knows... they may actually derive income from those sources.
But what the typical pharmacy consumer doesn't know is that even though the pharmacy is the one collecting the co-pay, it's not the pharmacy that's making all the money in the pharmacy business. The drug manufacturers are doing well, of course, but in the past few years the top dogs are the Pharmacy Benefit Managers (PBMs). They're the ones that run the show between the patient, pharmacy, and insurance. They get fees for everything and everyone in the process. And they're the ones really getting rich in this whole process. See this LINK.
What you also might not know is that pharmacies contract with Pharmacy Benefit Managers (PBMs) to get better reimbursement prices on claims submitted through the PBM. As part of this contract, PBMs require that pharmacies accept GoodRx and other discount cards. Now why would they do that? Because they've ALSO contracted with GoodRx to get a piece of the pie whether you use your insurance or the GoodRx card.
If GoodRx gets you a price less than you would pay in a cash situation, the PBM gets a slice of the pie, GoodRx gets their "referral" fee from the pharmacy, the pharmacy takes it in the shorts, and everyone is happy except the poor pharmacy team that does all the work and risks patient safety to save the patient a few bucks (See Not-so-GoodRx Part I).
"Referral" fees are bad enough, but that's not the end game. The CEO and his band know where the real money is, and that's what it's all about. No matter what they tell you about how your personal information is not required to use GoodRx, that is a LIE. Every pharmacy, everywhere submits ALL of the patient personal information EACH and EVERY time a claim is submitted to the GoodRx BIN. This data is captured and stored. I know it, you know it, and the CEO knows it... and that's why they have tediously and carefully crafted their policy statements on privacy.
Here's what they tell you upfront right now:
GoodRx does not sell your personal medical data. In other words, GoodRx does not sell information regarding your drug prescriptions and medical conditions that is linked to your name, contact information and other personal data you provide us. (See LINK.)*
*As of today. Who knows what they'll change it to tomorrow after they read this blog post?
"Great," you're thinking. They don't sell my information.
Ok, let me make this statement for you. Right now, as I'm typing this, Crazy RxMan is not standing up. However, I may stand up in the future, and will definitely have to stand up to go get a snack from the kitchen later. So this statement really has little meaning. It only talks about right now.
At the present time, GoodRx may not actually be selling personal private data... right now. They sure keep a lot of "data mining" engineers on staff for something they apparently have no intention of using or selling. Or rather they keep them on hand because that's phase two of the end game. Note that the policy statement does NOT say they won't sell it in the future.
"As we develop our business, we may buy or sell assets, and, depending upon the transaction, your personally identifiable information may be one of the transferred assets. In the event that we are acquired by another company, your personal information may be part of the assets transferred to the acquiring party."
You gotta love attorneys.
And of course, the CEO ignored my request:
Imagine that... Facebook is free to use because they collect your data and use it to sell products to you by pushing ads into your Facebook timeline... and wouldn't you know it, GoodRx is free too, founded by someone who knows all about the Facebook model of doing business. Is that really just a coincidence?
A promoter of another discount card (or is it just GoodRx repackaged in another form?) on Twitter tried to make me seem obsessed and suggest that lying to the public is ok:
Is that really how it is, now? Any company can tell you they will protect your private and personal information and then do something else and we're just supposed to live with it? Really?
As to you patients out there: Saving a few bucks is nice, but not at the expense of patient safety or your privacy. Be careful and cautious, my friend, or some clown will take advantage of you.